After 4 breast cancers since 1988, I’ve lost track of the usual markers of cancerversaries. I can remember month and year of diagnoses but can no longer keep specific dates in my head. Also, there is confusion about what date to use for 3 of my cancers where the words and behavior of mammogram technicians and doctors resulted in my”knowing” I had cancer before the official biopsy results were in.
In any event, February 1988 marked my first breast cancer diagnosis at 29. That makes it 27 years of “living on borrowed time” as that first cancer was caught by me through a fluke of accidentally touching the right place at the right time and following up immediately with my doctor. Had it not been for the accidental touch, the tumor would have continued to grow and may well have spread into Stage 4 cancer.
Last year, I was very excited about making it to 26 years since first diagnosis. Maybe part of what makes me uneasy about claiming 27 years of survival is that I had a total of 4 breast cancers during this period. Other people seem to count their survival status as cancer free time and start counting again from zero once they have had a recurrence. If that is the “right” way to do things, I guess I am only a 3.5 year survivor as my last breast cancer was in July, 2011. Do people think I am a fraud claiming 27 years of survivorship when many of those years were spent in treatment for new primary cancers and recurrences? I am always careful to say 27 years from first diagnosis so I don’t think I am misleading anyone.
What really has me bothered this year is that for the last 6 weeks or so, my Facebook feed has been filled by the deaths of so many young breast cancer patients. It seems every 2 or 3 days, someone from one of my Facebook groups has passed on, leaving a young family behind.
This year I felt uncomfortable announcing 27 years of survival from first diagnosis under the circumstances of all the surrounding death in the air. Some people say they draw hope from my longevity, particularly in light of the multiple bouts of triple negative cancer, my BRCA1 status, and my lack of what would now be considered optimal treatment for someone with my history.
On the other hand, I don’t doubt that it strikes resentment in some people’s hearts that I continue to live despite all the odds stacked against me while others die shortly after diagnosis or after being told their prognosis was excellent as their cancer was detected early, they received aggressive treatment, and they were BRCA negative. Announcing 27 years of longevity in this atmosphere, seems a bit like bragging or gloating, which is the last thing I want to do. I have no idea why I am still alive considering all the cards stacked against me. All I can do is get philosophical and say this just isn’t my time to die. I have no secrets for longevity or avoiding Mets and we all know I have no secrets for avoiding recurrences!
Along with the tragic death announcements, there has been an increase in the amount of posts from women speculating on what caused their cancer and what they can do to prevent a recurrence. I have no answers for either causation or prevention. I have said before that cancer seems pretty random to me striking both triathlete vegans and self-admitted couch potatoes and everyone in between. I have yet to see a strong pattern or have an aha moment where all the pieces of the puzzle fall into place for me. The same goes for recurrences and metastasis. Those who radically change their eating habits and make other lifestyle changes seem as likely to have their cancer come back as a recurrence or a metastasis as do those who change very little. After 27 years of watching cancer prevention tips come and go and sometimes be turned completely around (I just read that high doses of soy are good for preventing cancer after 20 years of it being cited as a cancer promotor), I personally have little faith in these promises of prevention or a cure.
Along with the string of deaths, there seem to be an unusually high number of women experiencing either local recurrences or Mets. The combination of the deaths and the disease progression have created high levels of anxiety in the support groups. You start to wonder if you are next in line for some cancer catastrophe to strike your life. This probably explains all the comments about cancer causation and prevention.
I want to feel good about my 27 years of post-diagnosis survival. The road has been hard and bumpy and like everyone else, I have no idea what is around the next corner. I have spun the cancer Wheel of Fortune 4 times now and have been lucky to have only local recurrences. But how many times can you spin that wheel and avoid the slots marked for metastasizes and death? I think I have used up all my get out of jail free cards and if forced to spin again, I don’t anticipate a 5th local recurrence.
Intellectually, I know the deaths and disease progressions will level out in time. But in the meantime, these events are extremely stressful for everyone involved. It’s not a good time to be celebrating a long-term
cancerversary in the midst of all this pain.
So I will be privately pleased to still be alive and able to watch my children grow up. At the same time, I will continue to mourn for the lives lost or forever altered by new recurrences or metastic disease. This will be a very quiet celebration of life and one that I will not take for granted. Thinking of my fallen pink sisters, I think “there but for the grace of God go I”.
Sharon Greene. February4, 2015
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4 Times and Counting 